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Research Group

The ProgStar study was comprised of nine international research centers, as well as administrative offices, data resource centers, and affiliated centers. Please be aware that addresses and contact information shown below were provided in 2015, and may have changed since then.

If the links below are no longer working and you cannot find the person you are looking for via other search methods, please contact the principal ProgStar investigator HPN Scholl.

Administrative

Chair’s Office

Wilmer Eye Institute
Johns Hopkins University School of Medicine
1800 Orleans Street,
748 Maumenee Building
Baltimore, MD 21287

Insitution Contacts

  • Hendrik Scholl, MD, MA

    Study Chair, Principal Investigator

  • Rupert Strauss, MD

    Co-Investigator

Foundation Fighting Blindness

Clinical Research Institute
7168 Columbia Gateway Drive - Suite 100
Columbia, MD 21046

Insitution Contacts

  • Patricia Zilliox, MD, PharmD

    Chief Drug Development Officer

  • Janet Cheetham, Pharm D

Resource Centers

Central Reading Center

Doheny Image Reading Center
Doheny Eye Institute
1450 San Pablo St, DEI-3603
Los Angeles, CA 90033

Insitution Contacts

  • Michael S. Ip, MD

    Medical Director

  • Anamika Jha

    Project Manager

Data Coordinating Center

Dana Center for Preventive Ophthalmology
Wilmer Eye Institute
Johns Hopkins University School of Medicine
600 North Wolfe Street - Wilmer Suite 122
Baltimore, MD 21287-9019

Insitution Contacts

  • Sheila West, PhD, PharmD

    Director

  • Ann-Margret Ervin, PhD, MPH

    Co-Director

  • Jennifer Jones

    DCC Coordinator

Clinical Centers

Cole Eye Institute, Cleveland

Center for Genetic Eye Diseases
Cole Eye Institute
Cleveland Clinic
9500 Euclid Avenue
Cleveland, OH 44195

Insitution Contacts

  • Elias Traboulsi, MD

    Principal Investigator

  • Meghan Marino, MS, LGC

    Coordinator

Greater Baltimore Medical Center

Physician's Pavilion West
6569 N. Charles Street - Suite 504
Towson, MD 21204

Insitution Contacts

  • Janet Sunness, MD

    Principal Investigator

  • Carol Applegate, MLA, COT

    Coordinator

Moorfields Eye Hospital, London

162 City Road
London EC1V 2PD
United Kingdom

Insitution Contacts

  • Michel Michaelides, MD, BS, FRCOphth

    Principal Investigator

  • Rupert Strauss, MD

    Co-Investigator

  • Simona Esposti

    Co-investigator

  • Jade Barnfield

    Coordinator

Moran Eye Center, Salt Lake City

University of Utah
65 N Mario Capecchi Dr.
Salt Lake City, UT 84132

Insitution Contacts

  • Paul S. Bernstein, MD, PhD

    Principal Investigator

  • Kim Wegner, BS

    Coordinator

Retina Foundation of the Southwest, Dallas

9600 N Central Expy - Suite 200
Dallas, TX 75231

Insitution Contacts

  • David Birch, PhD

    Principal Investigator

  • Yi-Zhong Wang, PhD

    Co-Investigator

  • Paulina Mejia

    Coordinator

Scheie Eye Institute, Philadelphia

University of Pennsylvania
51 North 39th Street
Philadelphia, PA 19104

Insitution Contacts

  • Artur Cideciyan, PhD

    Principal Investigator

  • Samuel Jacobson, MD, PhD

    Co-Investigator

  • Sharon Wolfe-Schwartz

    Coordinator

The Vision Institute, Paris

17 rue Moreau
Paris, 75012
France

Insitution Contacts

  • José-Alain Sahel, MD

    Principal Investigator

  • Isabelle Audo, MD, PhD

    Co-Investigator

  • Saddek Mohand-Said, MD, PhD

    Co-Investigator

  • Caroline Laurent-Coriat, MD

    Co-Investigator

  • Ieva Sliesoraityte, MD

    Co-investigator

  • Christina Zeitz, PhD

    Co-investigator

  • Fiona Boyard

    Co-investigator

  • Minh Ha Tran

    Coordinator

University of Tübingen

STZ eyetrial am Department für Augenheilkunde
Universitäts-Augenklinik
Elfriede-Aulhorn-Str. 7
72076 Tübingen

Insitution Contacts

  • Eberhart Zrenner, PhD

    Principal Investigator

  • Gesa Astrid Hahn, MD

    Co-Investigator

  • Tobias Peters, MD

    Co-Investigator

  • Fadi Nasser, MD, OPH

    Co-Investigator

  • Barbara Wilhelm, MD

    Co-Investigator

  • Benjamin Beier

    Coordinator

Wilmer Eye Institute, Baltimore

The Wilmer Eye Institute
Johns Hopkins University School of Medicine
1800 Orleans Street,
748 Maumenee Building
Baltimore, MD 21287

Insitution Contacts

  • Hendrik Scholl, MD, MA

    Study Chair, Principal Investigator

  • Yulia Wolfson, MD

    Co-Investigator

  • Mohamed Ahmed, MD

    Coordinator

  • Etienne Schonbach, MD

    Co-investigator

  • Mohamed Ahmed, MD

    Coordinator

Affiliated Centers

Japan Eye Genetics Consortium

National Institute of Sensory Organs,
National Hospital Organization,
Tokyo Medical Centre,
2-5-1, Higashigaoka,
Meguro-ku, Tokyo,
152-8902,
Japan

Insitution Contacts

  • Kaoru Fujinami, MD, Ph.D

    Principal Investigator

  • Kaoru Fujinami, MD, Ph.D

    Principal Investigator